tag:blogger.com,1999:blog-8238963791587387765.post4055973982478174332..comments2013-02-26T06:55:41.846-08:00Comments on Breathing with the Tomerlins: Valentine's WeekJen Tomerlinhttp://www.blogger.com/profile/13109082657275680279noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8238963791587387765.post-71891551185165772832013-02-26T06:55:41.846-08:002013-02-26T06:55:41.846-08:00I am devastated to hear of your loss, and am prayi...I am devastated to hear of your loss, and am praying for your family daily. Whitneyhttps://www.blogger.com/profile/08636453740726944432noreply@blogger.comtag:blogger.com,1999:blog-8238963791587387765.post-960541180532170862012-09-01T15:53:45.669-07:002012-09-01T15:53:45.669-07:00Hi Nathan
My name is Jenna. You are a brave coura...Hi Nathan<br /><br />My name is Jenna. You are a brave courageous fighter. You are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.<br /><br />I have lung issues myself, and they don't know what it is yet. I have a raspy cough, coughing up mucos and flem. Hard to breathe, huffin and puffing.<br /><br />I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.<br /><br />I wrote this poem<br />Each of us are Special<br />Each of us different,<br />No one is the same<br />Each of are us are unique in our own way,<br />Those of us who have challenges, we smile through our day.<br />Those who of us who have challenges, we smile through our day.<br />It doesn't matter what others say<br />we are special anyway.<br />What is forty feet and sings? the school chior<br />http://www.miraclechamp.webs.comSmilen Champhttps://www.blogger.com/profile/16312018180245012719noreply@blogger.comtag:blogger.com,1999:blog-8238963791587387765.post-63745601537645142672012-07-26T12:32:05.396-07:002012-07-26T12:32:05.396-07:00I am sorry to see that you have a child with CF. W...I am sorry to see that you have a child with CF. We also had a child with CF. She was born in 1983, diagnosed in 1988 and passed away in 1997. Her name is Christina Marie DeCicco. She chose to donate her organs for CF research. It is amazing how far they have come since she passed on December 30, 1997. I am glad they are now able to pinpoint the gene mutations, this was not available to us in her lifetime. The vest was just coming into play at that time as well, but only for use in the hospital. Best of luck fighting CF. We are still fighting, as we have a great-nephew (Scotty Broadway) who has CF as well. You may find me on Facebook, Alberta Lewis DeCicco.Anonymousnoreply@blogger.com