Day 10

Well we have officially been in the hospital for 10 days and it is looking like another 2 weeks before we get to go home.
This week he will be having a allergy test done and then on Thursday or Friday he will finally be getting his Fundocplication surgery and a g-tube....
Yep we are getting a g-tube. I don't know how I really feel about this. He seems to gain weight good on his own but right now they want to get him to the 75th percent and we are only at the 50th. The docs are telling me that this is best for in the long run. I rather have him around for a hundred years then not. So G-tube it is.
I am nervous on how Brianna is going to react to his G-tube. She will probably try to give one of her baby dolls a g-tube. So I was thinking of going to get a cheap baby doll and have Nathan some how make it look it has a g-tube. She already gives all of her babies CPTs while I am giving Bryce his. Maybe she will grow up to be a doctor. Yeah right, she will be a perfect attorney. That child negotiates everything. I mean EVERYTHING and is stubborn as you can get.
Besides that nothing much is going on. They added some more medications to our ever growing list. His antibiotic and steroid will actually end when we leave the hospital so that is good. After his surgery and g-tube is inserted, they will slowly wing him off of his reglan.

Hopefully the worse is over...

Now we are in PICU.... Yes, ICU. Thank God our great team of doctors decided to do the bronchoscopy and the esophagogastroduodenoscopy ( EGD) first before doing the the fundoplication. They said the outcome would of been horrific.
During the procedure, all of his airways kept closing. They were very inflamed and irritated. It appears that Bryce has severe Cystic Fibrosis, severe asthma, and floppy airways. ( I forgot the medical term for it. There is only so much new medical terms that I can store in my head at a time.) He should out grow his floppy airways. Now we are are going full force on his cystic fibrosis. We will now will be starting treatment on him that you usually don't start doing until a child is 1 year of age. BRYCE is 3 MONTHS. I will post pictures from his 2 exams at a later date.
That is all I am going to write for now. I have to wrap my head around all this... Maybe I will write more later.

We are still there...

It is now day 6 in the hospital... I took this pic on Sunday, it's a little late.

Finally comfortable

He has been so uncomfortable with this tube down his nose.

Finally sleeping.....

He looks like the frog on his onsie.... LOL

G-Tube or NO G-Tube....

That is the question for tonight.... I will keep everyone posted.

Surgery Day.....

We are to report to the hospital at 8:00am tomorrow (Thursday). They will be doing a couple of labs before proceeding with surgery. I will keep everyone posted....