Wednesday, October 27, 2010

Long Time No Blog

I have been super busy. Not complaining because it has been nothing but fun stuff. Not my usual busy, trying to work and be at the hospital.
Since the last blog, we have been to 2 birthday parties and a pumpkin patch. As well as planning a birthday party for Brianna. I can't believe she is going to be 3. She is growing up so fast.
Bryce is doing just grand!!! I actually rescheduled his appointment for this week to next week. The doctor called me to ask me a few things and stated that they all were so surprised that I did that. I never reschedule and I usually talk to someone from the clinic everyday. (I am that mom that ask a million and one questions and always questions the docs why are they going that route and not this one.)They just laugh and answer the questions. They tell me that I do the most research than any other parent. But I am telling you, he is a totally different baby since we left the hospital last.
Well here a some pictures from the last 2 weeks.

Bet you can't guess who is Brianna's best friend???

Wednesday, October 20, 2010

Go Super Fast but not Super Duper Fast....

It's amazing what a 2yr old says, well almost 3 next month.
I think it might of been Monday morning. We were driving to daycare Bri says "Mom drive super fast but not super duper fast because the copers (cops) will get you." Where does she get this from??? I have no clue. I wish at times I could have a video camera recording her 24/7. She says the funniest things.
This morning, she walks into the kitchen and says "Mom my cups are everywhere! I have one in the living room, one in your bathroom, one in your room, one in my bedroom and 7 in my drawer." I said "Well, how do you know where you have all of your cups at." She replied, " While I was waiting on you, I went around the house and counted." Yes, she did say, "while I was waiting on you." I said, "Bri, then why didn't you pick them up and put them in the sink." She said, "I was to busy counting."

Monday, October 18, 2010

So far so good....

After coming home this last hospital stay, things seem to be going great. Thank God!!! There seems to be some kind of relief or something. It is like I have finally got the hang of this. I don't know if I am become more familiar with Bryce as a baby and more comfortable with CF. So lets just pray that Bryce stays in this good of health.

The funniest thing just happened. Brianna is giving Nathan and I trouble about going to bed. She is always in bed by 8pm and usually asleep by 8:30pm. As I was typing, I heard little pitter patter coming down the stairs. I yelled, "Brianna Paige, I know that is not you coming down the stairs." Then all you heard was her march back upstairs pretending it wasn't her. She is a nut. She says the funniest things and knows it.

Bryce has made a total 180 since getting the g-tube. He seems to be catching up on all his motor skills. We are giving him a lot of tummy, I don't think he likes it but I see his improvement.

Saturday, October 9, 2010

Second Home

We are back in our second home... Bryce has pneumonia. He is doing great, we have only been here for a little over 24 hrs and he is already getting his CPTs reduce from every 3 hours to every 4 hours. He seems to feel better and looks better.

They think we should be out around the end of next week. Keep your fingers crossed!

Wednesday, October 6, 2010

Our First Great Strides

I must admit that our first year of doing Great Strides was a success.... We won 1st in the most participants for one team, 2nd for raising the most money, and one of my participants won the 5k! I can promise you that it was not me.

I hope to double the participation and fundraising next year. So in other words, if you were not able to participate this year, mark your calender for the first weekend in October for 2011 event. If you were able to donate, then find one other person to donate with you next year.

Here are some pictures.

We are missing people in our team picture.

Monday, October 4, 2010

$2.1 Million Grant for CF to University of Texas

University of Texas at Austin College of Pharmacy Researcher Receives $2.1 Million Grant for Cystic Fibrosis Treatment

AUSTIN, Texas — A University of Texas at Austin College of Pharmacy researcher has received a $2.1 million grant to develop new techniques for drug delivery to the lungs, helping in the fight against such lung diseases as cystic fibrosis.
Dr. Hugh Smyth, assistant professor of pharmaceutics, was awarded the grant from the National Institute of Health's National Heart, Lung and Blood Institute.
"Cystic fibrosis is one of the most common fatal inherited diseases," said Smyth, adding that most individuals with cystic fibrosis die in their 20s and 30s from lung failure.
One of the major reasons for the poor life expectancy is the inability of treatment therapies to overcome barriers within the airways created by the disease, he said.
"The drugs cannot get to the lung cells responsible for cystic fibrosis symptoms," Smyth said.
The gene that leads to cystic fibrosis was discovered 20 years ago, Smyth said. Researchers devised gene therapy treatment protocols that promised a cure within reach. But, secretions of a dense, sticky mucus, a symptom of the disease, create barriers that are almost impossible to break through.
"Losing patients to cystic fibrosis is especially tragic since we know what causes it and what could be effective in treating it, but we can't break through the barriers," he said.
Smyth's research works to break open or "knife" through the sticky secretions so that gene therapies and drugs to treat symptoms can get to the cells. Research has shown that drugs can be pulled through the sticky secretions.
"It turns out that the sticky secretions are susceptible very small particles in a magnetic field," Smyth said.
Researchers in the lab use magnetic fields to move extremely tiny particles called nanoparticles that are administered to the lungs. Magnetic fields, like those used in magnetic resonance imaging (MRI), are then used to basically turn the particles into nanoknives that slice through or break up the secretions. They also can pull drugs and gene therapies through the sticky secretions using magnets that are slightly stronger than refrigerator magnets.
These processes, Smyth said, will open pathways through the secretions that will permit the drugs and gene therapy to reach their target. This type of nanoparticles has proved both safe and effective in MRI imaging and Smyth feels the process holds promise for treating cystic fibrosis patients.
Findings from his studies are believed to have applicability to many other lung diseases such as tuberculosis, asthma, chronic obstructive pulmonary disease and chronic lung infections.
For more information, contact: Nancy Neff, Office of Public Affairs, 512 471 6504; Hugh Smyth, College of Pharmacy, 512-471-3383.