Sunday, July 4, 2010

The First of Many

Happy 4th of July everyone! I have decided that keeping a blog would be the best way for the family and friends to keep up with Brianna and Bryce.

As the majority of you know, Bryce was diagnosis with Cystic Fibrosis on June 10, 2010 (he was 3 weeks). This was scary and devastating. This is the first for both sides of the families. Nobody knew that our families carried these genes (DeltaF508 and G551D). Overall, we all are staying optimistic.

Since then, we have visited the CF clinic at Christus Santa Rosa in San Antonio 3 times. The staff is wonderful. He has started his enzymes, vitamins, and chest physiotherapy. He is doing great! As of last Monday, he was 10 lbs and 14 oz and 22 and 2/3 inches. He is the cutest little thing! Our next visit to the CF clinic is on Tuesday July 6th. This visit is a family visit, which means that the grandparents are invited so that they may learn more about CF.

Brianna is doing great! We are keeping her life as normal as possible. She is still the ruler of the house. A wonderful big sister, who reminds Nathan and I to feed and change Bryce.

Here is a cute little story about Bri. She has noticed that I have been patting Bryce each night for his chest physiotherapy. Well on Thursday night, Nathan had the kids by himself while I was with the girls. He told me Friday morning that Bri had one of her babies patting it. She is so observant!!!

Those who don't know the other little blond boy in the picture with Bryce, that is Evan. Evan is the son of my cousin Brittany. Cutest little thing and will talk your head off.

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